Things are very intense around here regarding Mr. Gavin. For the past four months or so he has been becoming increasingly symptomatic of his autonomic dysfunction including small twitches that have now become full blown tremors, respiratory issues that revolve around crazy big drops in O2 saturations and also sleep issues -- just to name a few.
As most of you know Gavin tends to be a very fatigued and a sleepy guy. It is not strange for him to sleep 20 hours a day -- His body thrives on this kind of sleep. Well as part of the autonomic dysfunction Gavin is also having periods of insomnia. He is so tired but just can't get to sleep.
It's been 48 hours.
Adam and I are so tired. We were "nurseless" this weekend and therefore we were getting up to make sure Gavin was safe anytime he would start to cry, which was practically all night. I have been begging and pleading with the doc to try to figure something out for him but it seems like they just can't figure anything out. Gavin can only have IV medication -- which is making things difficult. He is also now running a fever. 101.3. Not high, but to high for still being on two antibiotics. His fluid from his belly is rotten which means things are headed in a bad direction. Just praying that we can hold off on a hospitalization until November.
I'm just to stressed right now.