Thursday, October 29, 2009

Thursday Update...

-0540-Edit



I'm not going to lie -- it was a horrible day.  Today we switched Gavin over from the morphine to the fentanyl patch and we lost so much ground as far as his pain control.  It takes the patch up to 12 hours to become effective, so after we took Gavin off the morphine pump we were giving PRN doses of morphine, but nothing was cutting it for him.


Gavin's threshold for medication is through the roof.  He is on an adult dose of fentanyl and is sill breaking through.  We have made some progress this evening, as he seems to be a bit more comfortable, but it's going to be a long night.


I did get in contact with a hospice agency that might work for us.  They will be coming out to the house next week to do the intake.  I have mixed feelings about it but I'm trusting that God will give us direction and give Adam and I the strength to figure out what will work best for us.


Tomorrow Gavin is off to the OR for his new line and it will be a bitter sweet day.  


I can finally tell him that he will never have to go through this again.  

14 comments:

kate. said...

I know there are no words that can make this better. I've been sitting here trying to come up with something great...something wise...something to make all of this seem better. But words from someone that isn't in your shoes are just that. Words. Truth is, there are no words for what all of you are going through. But there is love - lots of it - and it's coming your way. You are all in my thoughts - constantly. You are wonderful parents. You are an incredible Mommy. Madison is a strong little girl. And Gavin - well he is the original Superhero. You're doing the right thing. You're a wonderful Mommy, Karen.
Much love,
kate.

Anonymous said...

We are still praying for you all. Thank you for continuing to update. We wonder constantly how Gavin and you all are doing.
A note on his Fent Patch. Make sure they put a new one on before the old one wears off so you don't go through a 12 hour window of not enough meds on board. The patch usually lasts a few days. They could put a new one on about 10-12 hours before they expect to remove the old one.
Stay strong. You are all very strong.
Love, The Saballos Family CT

Jennifer said...

I wish I knew what to say, something that was comforting & helpful. Since I don't and I can't, I'll just tell you that I'm praying for you and Adam, for the solid knowledge that whatever you do is the right thing for Gavin and your family. I'm praying for Madison, for strength & peace. And I'm praying for Gavin, for peace, comfort and miraculous healing.

God be with you.

Lorra said...

Dear Heavenly Father, Please lay your healing hands on precious Gavin. Keep him comforted, Lord, and take away his pain. Continue to give strength to Karen and Adam as they care for Gavin. Bless and comfort little Madison as she loves her baby brother. Praying, Lord, for a miracle for precious Gavin. Peace be with the Owens family.
In Christ' Name. Amen

mandie said...

everybody is right. there are no words. there are no words that anyone could speak to you that would take your pain away. what you are going through is beyond words, anyway. i do know, though, that we serve a Mighty God and His Holy Spirit is balm to our souls. press into Him, mama, He's the only One who can help you right now. just know that there are people whose prayers are storming the gates of heaven for your precious little boy and your entire family.

bridget said...

Praying for all of you, for Gavin's peace and for yours.

Alison said...

Continuing to keep in you in my prayers.........((hugs))

Aunt Becky said...

Will pray. Won't stop. Holding you all close.

Cammie Heflin said...

I'm so sorry, I was hoping to get a better report today. Praying for comfort!

MFA Mama said...

There truly are no words. Hopefully you are able to find a good way to keep ahead of Gavin's pain and the line placement goes well so that he can get out of the hospital and you can spend some time as a family. Thinking of you, with admiration for your grace in this impossible situation.

Anonymous said...

Praying for Gavin and hoping you guys can make it home after the line is placed. Karen, I honestly don't know what to say. My heart breaks for you. As you face tomorrow knowing its the last time he will have to endure the procedure and also knowing its his last line I can only cry those bittersweet tears for you. I am so sorry your sweet boy is going through so much. I am so sorry for sweet Madison and the weight her tiny heart carries. I am so sorry for you and for Adam. My prayer is that you have time. More and more and more and more time with your son to make as many beautiful memories as your heart can hold. Still praying, Trish Adams

Heather said...

I too, like your friend Kate,am at a loss for words but I am not void of prayers for you and Adam.For Madison and for the tiny but oh so mighty, fighter Gavin.Karen, I cannot remember when it was that you left a comment for me and I in turn went to you,certainly well over a year ago but I have been drawn back,almost daily ever since.And one thing that was so apparent from the get go,was what an incredible mommy were and are.What a strong marriage you had built and what amazing faith you lead your life with.Even and most especially in difficult and dark times.My love comes to you from across the miles and I send you peace and strength for the journey ahead.

Tina said...

I admit, I was also hoping for a different post. No words, just hugs and prayers. I wish I had more. I'm sure everyone does.

Wifeof1Momof4 said...

My heart breaks for your family, but I will continue to pray. I forget how I originally found your blog, but I am here often and have appreciated your transparency about Gavin's illness and your family.

I cannot find words right now, so I will just say I will continue to lift you up to our Father.