I'm not going to lie -- it was a horrible day. Today we switched Gavin over from the morphine to the fentanyl patch and we lost so much ground as far as his pain control. It takes the patch up to 12 hours to become effective, so after we took Gavin off the morphine pump we were giving PRN doses of morphine, but nothing was cutting it for him.
Gavin's threshold for medication is through the roof. He is on an adult dose of fentanyl and is sill breaking through. We have made some progress this evening, as he seems to be a bit more comfortable, but it's going to be a long night.
I did get in contact with a hospice agency that might work for us. They will be coming out to the house next week to do the intake. I have mixed feelings about it but I'm trusting that God will give us direction and give Adam and I the strength to figure out what will work best for us.
Tomorrow Gavin is off to the OR for his new line and it will be a bitter sweet day.
I can finally tell him that he will never have to go through this again.