Wednesday, November 4, 2009

Home and Back Again...

Yesterday everything was set for discharge.  We transitioned Gavin from the hospital's bi-Pap machine over to out ventilator we will be using at home.  He did have some difficult going onto the home vent because we are not able to give him as much O2 as what the hospital can give.  On 4 liters he was struggling to stay above 90% O2 saturation in his blood. 


After a few hours he seemed to settle into his new machine so we signed our papers and headed home.  It was a long ride.  Gavin was very uncomfortable and he desated most of the way home.  Once we were home his O2 was up be he was just very agitated and uncomfortable.  Our nurse arrived and it just kinda went down hill from there.


We were totally overwhelmed once we got home.  Gavin is on so many IV medications and infusions that it can drive even the most skilled doc or nurse insane.  Our nurse was helpful but I was still feeling a little uneasy about everything, plus have a ventilator now that he is completely dependent on is very scary.


I finally went up to bed and a few hours later Gavin's nurse woke me up to say he was shaking and was breathing very fast. I came down to find the all to familiar presentation of "sick Gavin."  At first his temp as still very low so I wasn't too concerned and just called the doc to see if we could give additional meds to make him comfortable.  A few moments later he was getting worse and his temp was way up.


So we all packed Gavin and I up and headed out the door and back here to duPont.  Gavin is doing better, temp is down to a low grade fever and his breathing is much better as we are giving him more O2.  I'm not sure hoe I'm feeling about all this.  I felt very panicky at home wondering what they heck was going on in his little body and wondering if this could possibly "it."  Now I'm feeling a sense of relief as he is now looking the same as prior to leaving the hospital.  I feel an odd sense of comfort being back in these walls.  It's so safe here right now.  Anything out of the ordinary and the docs come running.  I really want to get home, but I want Gavin to be ok at home.


It's all just a mess.  Nothing is working out as planned.  I just want to be together as a family in the new house.


Please pray.

48 comments:

Jennifer said...

Oh Karen, I wish I knew what to say. Last night, I was imagining how glad you must have been to finally be at home again, all under one roof, in your own beds again. I can understand how you must feel like you're on a high wire with no safety net though, at home, nobody else but you to take care of him. That sense of responsibility as a parent can feel crushing sometimes. Hopefully, a few more days at Hotel duPont are all Gavin needs to get settled down so he can come home to his "new home" and you can all enjoy some much-deserved family time together.
Always praying....

Sarah Endy said...

Praying for Gavin to be stable to come home. Praying for comfort and peace for you all, no matter where you are!

bridget said...

I'm so sorry - I was so hoping your little man would be settled in at home - but glad you have the support you need. Praying for all of you.

Kirsten Yarnall said...

All of us have been praying for exactly that. Trey just prayed last night again at dinner asking the Lord to please allow Gavin the chance to see, enjoy and live in his new room and in the house that He has blessed your family with. We are praying constantly for all of you and hope that your wishes come true. We love you and are standing with you through this time. Sending blessings.

Nicole, Drew, Jack, Megan, Sophie, and Lucy too said...

I'm so sorry...
We will continue our prayers for Gavin and your family! We pray that you will ALL be able to move into your new home together.

Susan Hart said...

YOU CONTINUE TO BE IN MY PRAYERS.

carrie-anne said...

Heavenly Father, Please comfort Gavin. Surround him with peace and comfort. Guide his doctors in helping Gavin. I pray you guide their hands in this-and their hearts. Lord I ask that you comfort and bless Madison too-she is a super/loving big sister. Be with Karen and Adam-they are amazing parents. May you grant them the wisdom to know whats right. The faith to lean on you especially when things get rough. They need to be in the new house together...ALL of them. Help the doctors to make this happen . They deserve some fun peaceful family time together. To you all Glory is Given, Amen
Pray for stability, comfort and peace for Gavin. An abundance of prayers being said so that you all may enjoy the new home that God has blessed you with...soon!
Much love...
Carrie-Anne, Steve Ashley & Alexa

Anonymous said...

Praying for Gavin and all of you that you will get your hearts desire to be at home with your family. Meanwhile, Trusting with you as you do what's best for Gavin at the moment. Continually praying....~Moses'

Steve said...

Karen and Adam, I have been following your blog for the past few months from Woodstock GA. I am praying for Gavin, you and your family during this difficult time. Our Savior is in control. Even though we have never met, my family and I feel connected to you through out Faith in Jesus Christ. I am praying that he will be able to go home once again.
In Christ,
Steve

Tina said...

Oh Karen. No words can really express how I feel. It's the same as everyone else will write, but just know they are sincere. We're here for you.

Jodi R said...

we are so sorry for you and the family. We continue to pray! God willing, maybe Gavin is just waiting to go to his new home, which is beautiful I must say. Prayers and Hugs for you and your family.

abxmomof3 said...

Thoughts and prayers are coming your way. Transition from hospital to home can be hard and tiresome but I believe you will get there and have the chance to enjoy your new house as a family. Wish I lived closer and could be of more help but kow you are always in my thoughts and prayers.

Vickie Heydenreich
Florida

Melody said...

I am praying for you and your family!

Rachael said...

I'm here too. I can't think of anything to say, but I wanted you to know I'm here. {{hugs))

reesha said...

I wish we could sprinkle pixey dust and make everything ok. Hang in there.

therextras said...

ditto Sarah's message.

Mona/Arkansas said...

I've been following your family's story for about a year. Have never commented. Am praying for your precious family.

Shari said...

I can only imagine all the feelings and emotions you have running through you. I don't have great words! I am praying for you all.

Ellen said...

I'm so sorry to hear this! I can understand how it would feel safe to be in the hospital! I'm praying for you guys!

Misty said...

still praying and thinking of you all everyday.

Tiffany Lockette said...

My heart and prayers are with you. Stay strong.

~♥Alli♥~ said...

;o( Goodness, I'm so so sorry. I'm always praying for you guys! ♥

Anonymous said...

praying for you all....

Kathy in Texas

Sheri Dillman said...

Found your Page through Kate Leong...just wanted you to know that our family is praying for your family. For strength and for peace...and for a true miricle.

Lori Fogg said...

My name is Lori and I am a friend of Sammy O'Connor family. I have been folowing your family for a few weeks now and I try to check in every day. My heart is just breaking for you all right now. I am praying for Gavin and your family. I pray that God gives you the strength in this difficult time. You are all in my heart and prayers.

Lori Fogg

Anonymous said...

Praying and praying for you all. Lord be close to this beautiful family.

JayCee said...

Praying....

Cammie Heflin said...

Definitely praying here Karen.

Heidi said...

(((Karen))) Im so sorry the transition home didnt go well for Gavin, poor baby. Im glad he's resting well right now, hopefully youll get your wish to give it a try again soon. You all deserve to be home together...continued prayers for your family-

Heidi and Jack.

Lisa Marie said...

Karen and Adam, we are so sorry... we were hoping you were all settled at home now as well. We are praying that Gavin will remain stable and you are all able to be home as a family in your new house. In God's love, Lisa and Michael

skynan said...

I've followed Gavin's story for quite some time but never commented before, just wanted to say that I am praying for you all!

Lorra said...

Dear Father in Heaven, I ask that you lay your healing hands on Gavin's little body. Take away his pain and keep him comforted. Give wisdom to the doctors and nurses who care for him. Grant Karen and Adam the strength and ability they need to meet Gavin's needs. Bless and Keep Madison as she touches and loves her baby brother. Thank you, Jesus, for the Owens family. May you send angels to surround them as they bring precious Gavin to their "new home"
for which they have been blessed.
In Jesus' Name. Amen

Aunt Becky said...

Praying for everyone.

Heather said...

Thinking of you all a whole lot and praying even more.

Cindy Heintz said...

Karen & Adam, Praying so much that Gavin can come home with all of you and be close to the family.
Gavin we love you.....You are so brave and a great little fighter. Thoughts and prayers ALWAYS!

BrunetteKoala said...

I can't imagine what it's lie for you guys at the moment. But my heart is breaking for all of you. Hoping you do get out at weekend and into Gavin's House. How you guys are handling this, you are an inspiration, I hope you know that. You truly are.

With much love and lots of fervent prayer,

Laura Anne x (@koalainscotland)

Just Another Ordinary Miracle said...

Karen,
Stay where ever you are most comfortable and secure. Ivey still has a home nurse every night, even after all of this time. That in itself is an adjustment - they are not as 'used' to some of the complications. I know you are exhausted. We love you family and are praying for you. Be where ever you feel comfortable, where Gavin in most comfortable - Gwen

Ckinneer said...

Karen, we are praying for you and your family. Proverbs 3 says “Trust in the Lord with ALL your heart and lean not on your own understanding; In ALL your ways acknowledge Him..."
Love,
The Kinneer's ~ Woodstock, GA

amy said...

sending up prayers for each of you...

Jen said...

still praying..I am sorry things are not going as planned..it is so incredibly frustrating..

Jennifer said...

Praying so hard...you're all on so many hearts and minds always...Please Lord, allow Gavin to become stable and remain that way to be able to come home on Saturday and be with his family, who need him so much.

Sharon said...

Praying that you guys can go home....

turtlemama said...

Saying prayers of peace for your beautiful family.

Anonymous said...

We're following you on Twitter. We're praying Gavin can get home and his lungs continue to heal.
Debbie Saballos in CT.

Barb said...

Karen, My heart just breaks for your entire family.You are such a living testimony to what it means to stand in faith. I am totally expecting a miracle from God.By His Stripes, GAVIN is healrd!!!

Gretchen said...

Prayed that you would feel His presence mightily and palpably. Over here from Ashley's blog.

Reagan Leigh said...

Sorry I haven't commented lately, I just don't know what to say! Gavin (and your entire family) is in my constant thoughts and prayers. Seriously...I have been checking the blog/twitter constantly for updates. I hope and pray that everything works out, so that not only you get into your house as planned on Saturday but that Gavin feels better and can enjoy it as well. Lots of prayers being said for you. Lots. Sending our love from Texas...

Anonymous said...

God bless this child and his family! They are showing us how we as Christians ought to fight. Fighting for our families, country, and lost souls. Gavin has tought me how we as Christians should do battle against Satan and his dark forces.....we should fight to the literal death for our lost family and friends and people we interact with each day. We will see Gavin again!!!!. Tell someone about JESUS for the Owens sake!