Sunday, November 1, 2009

Sunday...

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Last night was horrible.  For anyone following  us on twitter you would know that I was up most of the night watching Gavin's struggle to breath.  It started with an increased need for O2 and the morphed into a temp of over 106.  By that time we had to bring in the high flow nasal cannula and he was on 9 liters at 100% O2.  HIs sats still were not great.

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This morning he continued to worsen and it was later found by xray that both of his lungs are 50% collapsed, explaining the need to so much oxygen.  From eh xray it doesn't look like any type of pneumonia but rather sludge that builds due to Gavin being so weak he cannot take deep breaths and therefore the tiny vessels begin to collapse.

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Our doctor this morning had a talk with us and discussed all the options -- some of the talk was grim but we are still hanging on to hope.  We made the decision to move him to bipap and put some pressure back into his lungs.  So far he is doing great on the bipap.  He is sating 100 and his heart rate is down and he just looks a lot more comfortable.


We took him off his TPN and put him on normal fluids at a low rate, thinking that if there is an infection in the line we will stop putting pushing so much fluid through the infected line.  We also are running both Albumin and lasix to try to push some of the enormous amount of fluid off his body and out of his lungs.  We added an additional antibiotics just in case we are missing something.

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This afternoon I'm feeling a little better.  His temp has come down, his heart rate is down and he is resting comfortably and not struggling to breath.  We will be taking him home.  Gavin wants to go home.  In fact the only thing that calmed him down after putting the bipap on his face was me softly telling him that we could go home and play with Madi and play with his choo choos.


He softly whispered "ok."

29 comments:

Ellen said...

I am sooo sorry you had such a bad night! It makes me cry! I am so sorry you have to go thru this! I am praying everyday for Gavin!

Anonymous said...

aw sweet boy, hang in there and get into that great new house

Shari said...

My heart breaks for you! Poor Gavin! So Sweet! I continue to pray. I just got done reading the news story. God is sure amazing and I am so glad He put those people in your path to make your dream come true!

Jessica said...

Take that sweet little boy home. Praying for you guys. That you get rest.
Thank you for sharing these pictures...Father and son. They are precious.

Smileyface said...

Oh my heart just breaks for you....still following your blog....and your testimony of what a Mighty God we serve and how He holds us ever so tightly in His Arms. Hang in there!!! Believing that God is the Ultimate Healer!!!

mandie said...

you are in my prayers. praying fervently here for your little man.

Anonymous said...

So glad to hear that Gavin is smiling...Praying for all of you! Stopped by the house and dropped off soft pretzels for the crew and the place looks AMAZING!!

Joy

Heather said...

Saying an extra prayer for Mr.Gavin on this Sunday afternoon.Saying extra prayer's for you and Adam and sweet Madi as you journey forward.My peace and strength and our God's grace cover you through these days.Love from California.

Lorra said...

Praying for Gavin. The pictures of father and son are precious. So sorry you had a rough night. Praying for comfort and peace.

CJ Mills said...

praying for you guys

~♥Alli♥~ said...

This breaks my heart!! Poor baby! Praying for you all.

Baylee and Blair's page said...

This breaks my little heart! I'm so glad you guys get to go home with Gavin!

I'm still praying that he will heal and will be able to have some fun soon!

Hugs - Tiffany

grey like snuffie said...

Oh sweet God...asking God to allow me to help carry the burden through prayer...

Jen said...

I am sooo sad to read this.. still praying for you all and especially Gavin every day!

Karen said...

Thinking of you Karen, sending hope and strength.

KK said...

I can't imagine what your heart is going through. Praying.

ISO (In search of) said...

Awe. My heart is breaking. He looks so pale. He is such a little warrior. Praying with all my heart for him and all of you. Praying that he gets to go home with you very very soon and healthy.

amy said...

breaks my heart too!! sending some prayers your way...

Tiffany Lockette said...

Praying for Gavin.

Lisa Marie said...

I am so sorry you had such a rough night, this absolutely all breaks my heart and I can't possibly imagine being in your shoes right now. We are just praying and praying for Gavin and the whole family. I'm so happy you are taking him home. He will be so much more comfortable there. Love and Blessings, the Walk family

tripntwinmom said...

Sweet baby boy. Hang in there. Mom and Dad will get you home. Sending up MANY prayers tonight..

Kate said...

I'm so sorry for your family. I pray for peace for Gavin and comfort for you all. ((( many hugs )))

bryan hill said...

Praying for you. Struggling for the right words......I can't imagine what you guys are going through. Praying for you.

Ashley said...

We are so thankful for your team of doctors who understand the importance of your home for Gavin. Home is where he wants to be. Our hearts are breaking each day as we pray for your family Karen. Our older two children gathered around the computer with me Saturday morning and my 14 year old son walked away to hide the tears in his eyes. The photos of Gavin in his hospital crib are all to familiar to my children. We are all praying for you guys each day and we pray for time. Quality time for your family. I'm glad your taking him home. Thinking of your sweet boy all day long and praying for strength for you all. Sincerely, Trish Adams

Tara from Douglassville, PA said...

Sending you hugs! hoping you find comfort & peace! I am so glad you met Erin & Jeff. They are wonderful people with huge hearts! It breaks my heart to see families go thru this with young children! please know i am thinking and praying for you all everyday!

Anonymous said...

continued prayers for Gavin and your whole family!
Those pictures just break my heart - for I miss seeing those big beautiful blues eyes and gorgeous smiles.....I'm praying that he is home with you all soon and that there will be beautiful pictures of him smiling and laughing and being the Gavin I have grown to love thru your family's blog....you all truly show me the power of Love and trusting in God.

Blessings,

Kathy in Texas

Cassie J. said...

Am praying for a miracle for you and your family. No other words can comfort you, I know, but take comfort from the GREAT comforter that is beside you always!

Heidi said...

awwww, how sweet. Poor baby, he is such a fighter. Thanks for sharing these photos of he and Adam. I thought about him all weekend but didnt have access to a computer :( Im so sorry you had such a rough night, Im glad he is much more comfortable with the bipap and hoepfully youll be taking him home soon. Continueing to pray hard for your sweet boy...hugs, hugs, hugs...Heidi and Jack 6, mito

Erin said...

I am praying for sweet Gavin. I pray that GOD will heal his sweet body. I found your site through another child we follow.

HUGE HUGS!

Erin
www.caringbridge.org/visit/braydenthomas1