Friday, November 6, 2009

Time to Go...

I find it hard to believe it's even time to write this post.  Gavin is in his last moments.  His breathing is now totally dependent on the biPap, which is acting like a ventilator.  He is well sedated and we will keep him comfortable and on the biPap until the rest of our family arrives from out of state tonight.  We are praying he will stay with us until then as there is a chance the morphine will stop his heart.

I've gone from totally a mess to having a nice sense of peace.  Gavin needs to go.  He is suffering, and in fact we have not seen our little Gavi in a long time.  The mito has destroyed his body beyond repair and he is ready to find his total healing in the arms of his Jesus who I know is waiting for him.

We were able to talk with Gavin's doctor who is in Guatemala, and he was able to walk us through some of these last moments.  It was nice to hear his voice and he has become such a comfort to our family.  We also were able to have a photographer from Now I Lay Me Down To Sleep come in and take many photos of our family spending time with Gavin.

We are tired and hurting and wondering how we will ever possibly live without our little boy.  Please pray that his passing will be beautiful and full of peace.  He has done an amazing work here on Earth, touching the lives of countless people across the world. 

It's now his turn to receive his reward -- peace.

Total peace.

317 comments:

1 – 200 of 317   Newer›   Newest»
Jennifer said...

Praying for peace. There's so much more in my heart that I want to say, I just can't find the right words, so I'll leave it at that.

Travis said...

Praying for peace for you all, too.

Anonymous said...

My heart is breaking for you and your family Karen and Adam. You are right. He and you have touched more lives than any of us will ever know... I know that Gavin has taught a little town in PA what it means to be a community in Christ again.

My prayers are with you.

Joy

Lori said...

Gavin has touched many lives here on Earth, I know he has touched mine and he will never be forgotten. Dear heavenly father, please give Gavin the peace his body needs, give his family the peace and comfort of your loving arms. Please be with all of them as they call out to you and help them to find peace through all of this. Amen

Anonymous said...

I have to believe there is a reason why all of you have gone through this long, devastating, time.

You are right. Gavin has touched so many people that he has never met.

I am sending you all the love a stranger can muster.

Wendy said...

Peace to you all in this most difficult time. Gavin and your family have touched many lives. We have all learned a lot from that sweet little boy. Our hearts break for your family.

Heidi said...

peace...he deserve this now more than ever.

So how could this incredible little boy that Ive never met get me so tearful tonight, he truly has touched my life...thank you for sharing him with us.

May god wrap you in his arms and allow you to find peace and comfort tonight, my love and prayers-

Heidi & Jack.

Anonymous said...

Praying for your family. Praying for peace and comfort.
-the landaverry family

a friend said...

Jesus, be very near. When it's time, please gently take Gavin from the arms of those who love him here into Your arms of eternal love.

Emily said...

There are hardly words to express what I want to say to you right now. I am praying for you to see God's presence in the days ahead. They will be difficult, no doubt, but God will be with you.

I can just picture Jesus kneeling down and welcoming a perfectly healthy little boy home. Gavin deserves this more than anyone.

Darby said...

Lord Jesus, Welcome sweet Gavin home with complete and total healing. May his parents and family find total peace and rest in knowing that he longer hurts... that he is in the most beautiful place we can imagine... fully and completely restored in the arms of his Heavenly Father.

perfectly p said...

God is with us

THE LYONS FAMILY! said...

I have been reading your blog for the last several weeks, praying for your family. I don't know you all personally, but my heart is breaking just the same and little Gavin has touched my life as well. Praying for peace for Gavin, and comfort and strength for your family.

Michelle

Erin, Jeff & Calvin *Avery & Nolan* said...

I showed Calvin a picture of Gavi this morning so we could say goodbye in our hearts. He squealed just like he does when he sees Nolan's picture. I know that Avery & Nolan are waiting for their big angel brother Gavi with open arms & their cute little smiles. We are here with open arms for you. Deep breathes & love.

Katie said...

My heart is breaking for you. Words cannot describe how touching and inspirational your story is. I pray that this time will be a peaceful transition.

And when the time comes, Gavin can be at peace with the Lord. No longer feeling any pain. Only happiness and joy, running free.

My prayers are with you and your family.

Unlimited Hugs full of Love,
sent directly to you from Australia,
Katie

ISO (In search of) said...

Praying with you that you all have the peace that passes all earthly understanding. My heart is hurting with you. My children and I have prayed for Gavin and your family since I first found your blog.

Jesus, any amount of time Your children have with their children never seems enough. May this family be able to stretch the memories they have made until they see Gavin again one day. Thank You for Your perfect peace and in Your time, free Gavin from the earthly struggles he has born. Dear Jesus I ask that you give his family comfort and strength to see Your purpose. I thank You that You have given them courage to reach out and touch so many of us through their postings. Be with them always.

Anonymous said...

Dearest Family,
From coast to coast, we are covering you in prayer. Our hearts ache with you and for you. Mixed with our sorrows and sadness, we stand in hope and in joy, for we serve a risen Saviour. He is waiting in the wings for sweet Gavin. He understands your pain. He hurts with you. He loves us in ways we cannot even comprehend. May He pour out his love and mercy on your family and friends today.

Sweet Gavin - go in peace.

Anonymous said...

Your family is in my thoughts and prayers at this very difficult time. Know that you are doing what is best for Gavin no matter how hard it is. Gavin is so very lucky to have you for parents, to be with him and because you allowed him to be Gavin and worked so hard for him to live a normal life. My heart breaks for you at this time. But also knowing that Gavin is loved so much.Blessings for you and your family in this difficult time.
Gayle

Maria said...

Praying that God will give your family peace today and praying that God gives Gavin a peaceful transition into his eternal painfree life.

Cathy Davis said...

Praying for peace for all of you. May each of you feel God's presence in a way that allows to know He is there (because He is).

Longmeadow Mama said...

I am a life forever touched by Gavin. I hope there's comfort in knowing your whole family are such an inspiration to so many.
Everyone is in my prayers and am feeling led to pray specifically for little Madi in these days to come.
Love and prayers for peace that passes all understanding.

Amber said...

Praying for your dear family today. You all have been heavy on my heart all week, and I pray that you are granted strength as you embark on today. Oh, how incredible Gavin's smile will be when he sees the face of our Lord...

Shannon said...

Praying for you all. What a precious little boy who yes, has touched sooooo many hearts. God Bless you and give you peace during this time. Gavin-may you shine like the sign on wings of eagles.

Shannon

Anonymous said...

I'm so sorry that this time has come so quickly. I pray the peace that surpasses all understanding will descend upon you even now. I'm sorry.... so, so sorry!
Amy - Jonesborough, TN

Lisa Marie said...

Amen... No more pain, just Jesus. He has truly touched so many lives, for that you can be sure. God has used him in incredible ways. Praying for peace for all of you.

Lori fogg said...

Every day I check in to read your post. I know that there are no words to make this any eaiser for you. Your family and little sweet Gavin has touched my life and heart. He will Never be forgotten and I pray that God will comfort you and your family. Dear sweet Gavin go in peace. All my love and prayers.

Lori

mandie said...

your blog was one of the first blogs i found about mito after learning that my son had this disease. i have checked your blog daily (sometimes several times in a day) to check on gavin and the rest of your family. the moment i saw his precious little face, i was drawn in. the way your family has handled this difficult situation and fought to give gavin and madison a normal life inspite of all of doctors visits, hospital stays and living conditions that were not conducive to life with a chronically ill child...well, you guys are an inspiration.
may your little boy find peace and comfort on his way into the arms of Jesus, and may you guys rest in knowing that you provided the best life for such an amazing little boy.
thank you for sharing gavin's life with us.
may the King of peace comfort and guide you during this time.

Anonymous said...

Praying for a peaceful transition for Gavin, as he moves to his new home in Heaven. He will now be able to run and play! You have been such incredible Parents to him, as you gave him the most fun fullfilled life, dispite how difficult it may have been for you. What an inspiration for all of us!
Praying for Comfort, Strength and Peace, as your Faith gets you through this difficult time. You will see "one set of Footprints" as the Lord carries you through. He is Faithful and Will be there with you. ~Love you, Randy & Marilyn

Anonymous said...

Dear Gavin,
You have touched my life in more ways than you can imagine! Your blue eyes and beautiful smile have melted my heart. Your little body has fought so much. Jesus is waiting for you! Mommy, Daddy, and Madi will miss you beyond comprehension, but it's time for you to let go and be out of pain. We will all continue to pray for your family and friends to find comfort in knowing you will be in the most amazing place ever! Thankyou for touching my heart in sooo many ways. You are one of the strongest little boys I have ever laid my eyes on! You will always hold a special place in my heart!
-Forever in my Heart
Amy O'Connor
Gilbertsville, Pa

Anonymous said...

Praying for a miracle for your sweet Gavin, I have followed him for a long time , I just cant believe this is all happening. I wish there were words I could say but I there are not. Your in my thoughts and prayers.

Tyler said...

My heart just hurts this morning for you, but I'm covering you in prayer. My the presence of Jesus be so real in your heart today.

So much love,
Fran and family
TN

JeffH said...

Praying for you.

Suzy said...

I can't imagine the pain you are feeling, and it breaks my heart to think about it. I'm so sorry this is happening to you all. Holding you up to Papa without any words as I have none.

kate. said...

Gavin,
You have touched my life in a major way. I will never forget your sweet spirit - how you were willing to take chances at our house when you played with Gavin's ball - how you stretched your body to play and have fun with your big sister - how you looked at your Mommy adoringly with those gorgeous blue eyes. You're an inspiration. Your spirit and courage are what I want to instill in MY Gavin. I'm happy that you will find peace and healing and live with no pain. But it's hard to know you'll be gone. But don't you worry, Gavin. All of us will keep your Mommy, Daddy and sister very close to our hearts. We'll take good care of them.

Antique Mommy said...

God bless you and heal you. I weep for you this morning.

Anonymous said...

Oh, Karen. What to say other than my mommy heart is just breaking for you. I’m so sorry that Gavin’s journey is coming to this end, so soon. I’m so sorry that your dream of having him in his “new home” will not be. (The timing just stinks!) Sorry that you didn't have more time with your special boy. You have all run such a beautiful, graceful race. You have honored your family and the Lord. Gavin is at his finish line. Oh what a glorious reward he will receive! What an incedible perfect, whole little boy he'll be! But your (Adam and Madi’s) race is still to be run. It’s not a sprint, and it’s OK to take time to rest. I am praying so hard for you and your family. The Holy Spirit’s peace to just cover and bathe you. We love you all. Becky and family

Dana & Paul Miller said...

There are no words I could give you to comfort you through something no parent should have to experience. So, I will just pray to Jesus to give you some kind of comfort, peace, and lots of unending love. I have never met you but I wish I could give you a hug.

Dana & Paul Miller said...

My Jesus give you peace and love to your whole family at this time. You will be in my thoughts and prayers all day today.

Anna said...

Karen, there are no words for this time. Gavin is such a strong and special little man. You and your family have touched so many lives including my own. Today I pray for peace for Gavin. I pray that you, Adam and Madison will have the peace and strength to get through this time. You are always in my thoughts and prayers

faithWalker said...

Praying for peace, sweet sweet peace - for Gavin and your family. Thank you for sharing your story with us.

Deb

Susan from Kansas said...

Lord surround Gavin with your merciful love. Comfort his mother and father and sister and other family and friends and the thousands who have been touched by him in this life.

Kevin and Cami said...

I have just found your blog in the last couple of days from some friends that have been following you through your journey with Gavin. My heart is breaking for you and your family. I hope you can find much peace and comfort. Cling to your husband and Father in Heaven. Prayers and love, Cami

Regan said...

I don't know you and your family, but reading your post today I cried with you. I pray that God will give you peace and strength as you continue to navigate this journey.

seeking him... said...

Praying for your family.
With God hope always holds the hand of sorrow.

Anonymous said...

Yes, your family through Gavin's story has touched many lives. This may be on the only way some people will be faced with the question -- what do you hold onto in the middle of a crisis? God is here now, He was there yesterday and will be still here in the moments and days ahead. Our mighty God will protect and preserve your dear family and has brought so many dear Christians to walk along side you. Continuing to pray for God's grace, mercy and peace to all of you.

Nic said...

Praying for you family!

Courtney said...

praying for you.
hard to know what else to say.
my heart is so heavy...yet so thankful for the peace you seem to be feeling from Him.

JayCee said...

Praying for sweet peace for your family as Gavin heads for his heavenly home.

His Girl said...

love and prayers from a stranger who could even begin to know the right words but who hopes you'll find comfort from the Comforter this day.

Mom of 3 and bride-to-be! said...

My heart is heavy for you.
May you feel God wrapping His arms around you.

Go in peace my sweet sweet Gavin. You have left a soft spot in all of our hearts.

God Bless beautiful boy....

Catherine said...

I am praying for you today and all you will go through.

Me and My Boys said...

I'm so sorry. Jessica

Laura said...

I have been following your story and just wanted to let you know Gavin and your family are in my prayers.

Anonymous said...

Karen, Adam and Madison...

I have followed your plight for a while now and while there are no words that would comfort you, you must believe that little Gavin is here for a purpose and it is in that purpose that you are to grow. All of you are to garner strength for what lies ahead. Please, please keep the lines of communication open, especially for your little girl. I pray for Gavin and your family right now. He will be gaining his angel wings and will be there for all of you to help you thru the rest of your lives. My Christ lovingly take him in His arms and give him the health that he so deserves...

Steve said...

Praying for you!
Pray for peace that passes all understanding.
May the Lord comfort you during this difficult time,

amy said...

Gavin has definitely touched my life. Praying for peace...

Kate said...

I am praying so hard for you and your husband today.

You have loved him well.

Ellen said...

My heart is just breaking soooo much! I will be praying for peace for all of you. Gavin has indeed touched and changed many lives! My prayers are with you!

Shan said...

praying for you all

Lucy and Ethel said...

Having been in your shoes, I'm pretty sure I can understand the emotional turmoil you're facing. Your hearts have been shattering for some time at the thought of losing your beautiful little boy, and yet in the midst of the heartbreak - because you love him so much - your primary wish is for Gavin to be comfortable, free, safe, and happy.

He is comfortable now and will be free, safe, and happy soon.

And he'll be likely greeted by at least one very special angel :)

Many hugs and prayers for all of you -

Helen/'Lucy'

Holly said...

My heart is breaking. Our thoughts are with you. No more pain. No more tubes, wires and surgeries. Peace for your family and sweet sweet Gavin.

Jen said...

my heart is breaking for you..sending prayers up for your sweet family..

Anonymous said...

My heart is broken for you. I'm so sorry he is leaving. You have allowed him to live his life so well, and for that I am so thankful. Our Father knew that you and Adam and Madison would seek quality for Gavin and I know He is pleased. I will never forget his eyes, his smile, his face. Even in the midst of your own struggles you have been an encouragement to me at times when I thought I would break and I thank you for your thoughtfulness. Gavin is an amazing kid and I'm a better person for having "known" him and his family. You are in my thoughts and prayers. Sincerely, Trish Adams

Beth said...

so thankful that you have found peace, I know that feeling comes when you know the time has come.... I am still praying...for continued peace for you and your family, and comfort and for Gavin. Jesus is waiting to receive him in his arms just as he has His arms wrapped around you and will continue to hold you all tightly for a long time as you go through this process.

with deep respect and much love,
beth in colorado

Jamie Fenley said...

I have grown to love your family through this blog and my heart aches for you today. I'm so sorry that you will have to bear life without him when he goes to have peace and be with Jesus. I'm so sorry.

Hall Family in MD said...

I am praying for you all and can not even imagine what you are going through right now. Please know Gavin was an incredible little boy whose story I followed daily. ((Hugs))

Rusty & Teri said...

Praying with our hearts breaking for you.

The Millers

Chrissy Kramer cousin to Sam Oconnor said...

My thoughts and prayers are with you all!!

Sandra said...

Praying for you all, praying for peace for Gavin... I have no words, just tears....

Love to all of you.....

Tam said...

no words, just prayers...

the hodge family

Debbie said...

I am praying for peace for you and your family. Gavin will be in good hands and will soon be watching over you.

Steph Sierra said...

Karen I will be praying for you and your family.

Sean, Chelle and Carter Cates said...

Undescrible pain and suffering. That is what Gavin, your entire family and, in turn our family and the entire world blessed to know him and you, have felt for some time. As Christians, you are comforted that Our Lord and Saviour has His healing arms reached out ready to accept Gavin and remove Gavi's earthly pain and suffering. And yet, the emotional floodgates of love are too real, and it is very, very difficult for us to say goodbye.

God always had a plan for Gavin. It is still in place and evolving. Hearts and minds are being affected. For certainity, God brought our family's together. For that, we are immensely grateful. As foggy as it may be now, Gavin will always be with us and shaping our lives.

I've never embraced the idea of death. However the glory of being in Heaven must be the reward and is truly the gift Gavin deserves. Gavin, we love you forever.

Karen, Adam, and Madison, we love you too. Always. May God be with you all now more than ever. Our hearts are heavy, so heavy today.

Love and prayers,
The Cates Family- Sean, Chelle and Carter

Tracey said...

My heart is breaking for you and your family. I am praying that you will all find some peace in this time in your lives. God bless you all!

Reagan Leigh said...

I can't believe the time is here. I knew it was coming, I knew it was inevitable, but I was still praying for a miracle for your family. My heart breaks for you. I am so thankful that you do have that sense of peace...that is truly an answer to prayers. Sending our love from Texas and wishing we could be there to comfort you during this time.

Jennifer said...

Praying for little Gavin to have peace and no pain. Also praying for you, Adam and Madison.

abxmomof3 said...

Praying for peace for all. I have dreaded having to read what you dreaded to write. This is never easy. Gavin and your family have touched so many lives. Prayers, love and hugs are coming your way.

Vickie Heydeneich
Florida

Christina said...

My heart is also breaking....and as I write this I am welled up with tears. Nobody should ever have to say goodbye to their child.

Praying for you & your family!

Tiffani said...

Praying over these moments and minutes as you walk through this valley....thank you for letting us know Gavin...for sharing his sweet life with us...thank you for your honesty and openness as a Mom...

My children will be so sad as they've prayed many many times at our dinner table and during our school time for Baby Gavin...but they will also see how precious it is to be Healed by the Almighty...so Gavin taught them something very special...

Much much love to you, Karen.

Tiffani in GA

Jackson's Blog said...

Praying for peace for you all through this difficult time! Gavin has touched so many lives and you all are one amazing, beautiful family. God bless and you will be all will be in our thoughts and prayers.

taracleaver said...

Oh Karen... Praying for you all.

Ashley said...

Praying.

Rachael said...

Karen, I am so glad you are able to be at peace with this. I know it is shocking even though it was expected. I know you miss your little Gavi.

You are so strong.. I wish you continued peace in the days to come.

{{{HUGS}}}

Anonymous said...

Blessed Be Your Name
In the land that is plentiful
Where Your streams of abundance flow
Blessed be Your name

Blessed Be Your name
When I'm found in the desert place
Though I walk through the wilderness
Blessed Be Your name

Every blessing You pour out
I'll turn back to praise
When the darkness closes in, Lord
Still I will say

Blessed be the name of the Lord
Blessed be Your name
Blessed be the name of the Lord
Blessed be Your glorious name

Blessed be Your name
When the sun's shining down on me
When the world's 'all as it should be'
Blessed be Your name

Blessed be Your name
On the road marked with suffering
Though there's pain in the offering
Blessed be Your name

Every blessing You pour out
I'll turn back to praise
When the darkness closes in, Lord
Still I will say

Blessed be the name of the Lord
Blessed be Your name
Blessed be the name of the Lord
Blessed be Your glorious name

Blessed be the name of the Lord
Blessed be Your name
Blessed be the name of the Lord
Blessed be Your glorious name

You give and take away
You give and take away
My heart will choose to say
Lord, blessed be Your name


This song has been on my heart this morning for you all.
Blessings & Peace

Anonymous said...

My heart is so heavy for your family. I pray that as you say good bye to your beautiful baby boy that you feel held by our Father. Our family is also praying that you are granted a peace that passes all understanding in the moments and days ahead. God bless you all. The Dotson Family in TN

Stephanie said...

Praying for your family

Beth said...
This comment has been removed by the author.
Elanea Deal said...

Karen, Adam, Maddi and Gavin-

As I have been trying to keep up with your posts and what is going on with Gavin, my heart feels like its bursting! I am so broken for what you all are going through, I cant put it into words any clearer. I will continue to pray, for peace and for a clear moment that you and Gavin can have before its time for him to be with Jesus! You are in my thoughts and continueous prayers are for you all today!
Love from an old friend from Msf,
Elanea

Iya said...

Adding our prayers to yours. Grace and peace in Jesus' name, Love from the Hannum's

Elanea Deal said...

Karen, Adam, Maddi and Gavin-

My heart feels like its bursting in my chest when I think about what you all are going through. I am overwhelmed with tears and an ache inside. I will be continually lifting you up in prayer today, prayers for peace, and for you and Gavin to be able to have a clear moment together before he goes to be with Jesus.

Love from an old friend,
Elanea

Elanea Deal said...

Karen, Adam, Maddi and Gavin-

My heart feels like its bursting in my chest when I think about what you all are going through. I am overwhelmed with tears and an ache inside. I will be continually lifting you up in prayer today, prayers for peace, and for you and Gavin to be able to have a clear moment together before he goes to be with Jesus.

Love from an old friend,
Elanea

Thomas Family said...

Dear Gavin,
You have touch our hearts so deeply. You are such an amazing little boy who will forever live in our hearts. You and your family are a testament to love and devotion. We will never forget your sweet face and amazing spirit. We love you Gavin. Praying for your path to finding peace.

Anonymous said...

You are such a strong family and will see Gavin home to his forever home where you will meet again some day. Peace be with you! Gavin has touched my life from so far away. Again Peace to all as I wrap you in my prayers.

Dannette

Elle said...

I am praying so hard for peace for your entire family.

Jeff, Les and Max said...

We are praying for Gavin and your family. Our hearts are breaking for you.

Misty said...

oh karen... i pray that your peace continues and that gavin holds on comfortably until your family can all be together...
gavin, you have touched my heart in so many ways and i will never ever forget you!
many tears, thoughts, and prayers from Colorado.

Misty

Anonymous said...

I don't have any words but know that I'm praying and will continue to. Lisa Ruggles

Heidi said...

Your family is in my prayers.

Kait said...

May the strength and peace of Jesus find you and sustain you. My prayers are with you, my heart goes out to you.

Taria M. said...

I'm so sorry... my heart is also broken for all of you. Your son has inspired me with his amazing strength and beautiful smile. The faith of your family is not only evident, but encouraging for so many of us. As I sit here with tears filling my eyes, I know that Jesus is going to be welcoming that precious angel with open arms, and I pray for peace for your sweet baby, and for all of you. May He bless you and hold you so close to Him. With so much love....

Anonymous said...

Hello, I just want to say I am sorry to hear what Gavin is going through and the family. He sounds like a very awesome and sweet-hearted boy with a very big smile, from your words I read. You say about his leaving, yes phyically yes, but in spirit he will always be with you in all of your hearts. It is very hard when we loose someone and hurts beyond words, but later as time passes we can smile again knowing our loved one is just beyond those clouds lookin down at us, and is our Angel to protect us. I hope these prayers will help your family and friends through this time. He is one very special little boy. One thing that may help also, always let you know he is with u, is to get a heart locket and put his picture inside, that way he will always, always be there right beside your heart. Again I am soo sorry, and my prayers and thoughts are with you and your family and friends. God Bless.

ANewKindOfPerfect said...

Praying for peace and no pain during Gavin's transition from earth to heaven. Typing through tears. :(

Jodi R said...

Karen and Adam,I have no words, just tears!.Please know that you are in our thoughts and prayers.

Anonymous said...

I'm truly so sorry - I have no words right now....I'm praying for Gavin's comfort and peace as well as all of you! He has truly touch my life and that of my family - My heart is breaking for all of you!

Kathy in Texas

Anonymous said...

Praying for peace and strength for your family today and in the days to come. Thank you for sharing this precious child with all of us.

Gina

Kate said...

Praying for peace. For all of you.

Gavin, I know your family and all those who have come to love you are going to weep (I am crying as I type these words), but the angels are going to rejoice at your arrival in heaven and I know God is going to look at you and say, "Well done, good and faithful servant." Your family will be with you again and I say with total honesty that I look forward to meeting you one day.

Godspeed and love to you all.

Mrs Butterfly said...

I have been following your story on Sam's page...my heart goes out to you in these final hours ..but I also know that there is a welcoming committee gathering around the pearly gates at this very time ...waiting to welcome little Gavin into their arms..he will be well again and out of pain and in a much better place than we can ever imagine...in the arms of Jesus...Please know that you will be in my prayers today and the days that follow...God Be with you all....Norma Schwieterman

kyna said...

we love you sweet Gavin, give our Jesus a big hug for us. THank you for your sacrifice. Your life will continue to impact lives. You have given so much. I love you!

Karen, Adam, and Madi - Love you too! Praying for your hearts to heal and peace to guard your heart and mind.

Love you sweet Owens family!

Tiffany Lockette said...

I am in tears writing this comment. I have come to cherish a little boy who I have never met but who I somehow have grown attached to. The angels in heaven will rejoice to have such a blessed angel a part of their special group. I am deeply saddened but I too hope one day to have the privilege of meeting Gavin. I plan on telling him how he made me care deeply for someone I've never met. He made me pray more than I ever thought I could pray and he is such an inspiration to so many. My heart is with you. I hope you do find peace in knowing he won't have to hurt anymore, he will be at peace. All my love and prayers are with you and your family. Please tell Gavin his prayer warriors are so proud of him for being so strong.

Tina said...

Praying for peace for you all as he grows his angel wings. My heart is breaking for all of you right now.

Heather said...

I have watched, for well over a year, a valiant fight from one of the most courageous,tiny,warriors ever.I have watched awestruck,with deep admiration and with immense joy and often equal sadness,the love of a family,carrying more then they should be asked to.I have watched and learned, what true faith is all about.

Sending my love for strength and God's amazing grace to carry you all and most especially Gavin to peace.

Barb Wisler said...

For such a short time here on earth, Gavin has touched the hearts of so many. As much as you love him, know that he is going to be with Jesus who loves him even more. REST in that knowledge and that one day, you will be a family together in Heaven.

Love,
Barb

Livingston said...

Sorry. Praying for peace for your family. Gavin is in good hands now. The short time I have been reading about Gaving he has taught me a lot.

Courtney said...

Praying for your family as you say goodbye to your precious little guy!
With love from Denver,
Courtney

Anonymous said...

I have been a quiet follower for a long time now, and I have to say I have a pit in my stomach. I am a nurse, and I have seen countless families have a hard time letting go. You are all selfless and have made incredibly hard decisions but in the end, have done the right thing for Gavin. You are letting him go in comfort, with dignity, and family at his side. You may not feel it, but you are doing a wonderful job and your family brings strength to so many others. I hope you find some sense of peace knowing that. Gavin has touched so many and a have provided many life lessons.

Renee Little said...

Gavin has touched my life.

He has a place in my heart.

God has and will continue to use him powerfully in the lives of so many people.

I love this prayer...

Now I lay me down to sleep,
I pray the Lord my soul to keep;
Should I die before I wake,
I pray the Lord my soul to take.

Heather said...

Praying for you all. I came over from Ella's mommy's blog (http://jenmagee.blogspot.com/) and my heart is breaking for you and your family. Praying so hard for your peace and comfort right now in your time of sadness. I am glad you got 3 years with your precious boy. May those memories be cherished each day.

Anonymous said...

Praying that you find peace during this time. God Bless.
The Banta's
Charlotte, MI

BartolucciMR1 said...

I am many hours away from home, and I still am touched by Gavin's life. I cannot possibly understand the situation, but what I am understanding is that God's amazing and perfect will for Gavin's life has made such a huge impact on me... All I can do is pray and thank you for sharing little Gavin's story with me.

David said...

Thank you Adam, Karen, Madison, and, especially, Gavin for giving all of us a faith-ful example.
May His lovingkindness be upon you,
According as you have hoped in Him. (Ps 33:22)
His peace and His rest for His child. Amen.

Lindsey said...

We are praying for all of and sweet Gavin, for peace and strength, safe travel for your family, for Madisone,and that Gavin will be without pain, tears, or suffering.

Rachel said...

Praying for Gavin's peace. Praying for yours.

Robby's mom said...

I have been following your little boy for awhile. I am so sorry that you have to let him go but know that he will be free from all the suffering here and the good Lord will take care of him up there where he can run free with all the other angels.
It doesn't make it any easier but know that everyone is thinking of you and praying for you always. May the Lord lead you, guide you, direct you, and protect you.
Cory

HeyMickie said...

I have never met you or your family, but I have been praying for you for awhile. Now I am sitting here with tears running out of my eyes. May God be with you and comfort you and Gavin when He leads him home.

Anonymous said...

My heart is breaking as I read this. I have followed your blog for so long and what Im feeling isnt even an oz of what your family is feeling. I pray that he goes peacefully and that you find peace knowing that he will finally be healed.

Laura said...

Praying for you and your sweet family.

Kris said...

I'm praying peace for all of you. I'm so sorry for this pain and thankful for the peace Jesus is giving you.

Wifeof1Momof4 said...

I call on the name Jehovah - Shalom, Our God of peace to reign over you right now.

Anonymous said...

Karen and Adam, I have been following your blog and praying for your family for over a year from Texas. I have never commented, but wanted you to know that today you are once again in my prayers and I am absolutely heart-broken for your family. My nine year old son, Gavin, also sends his prayers to your little boy.

The Olson Family

Stacey said...

I have never posted before, however I have been following your blog for over a year now. My heart is breaking for your family right now. Even though I have never met your family, Gavin has touched my life in ways I didn't know were possible. Thank you so much for sharing his story with us.

Melody said...

Praying for you to receive peace and love that can only come from our Savior. He knows your needs and longs to meet them...God Bless your family!

Jennifer said...

trying so hard to find the magical words to make this day go away...I love you guys and am praying so hard for Gavin to find peace and happiness and for your family to find comfort in that...you are all in my thoughts and prayers today and always. Sending hugs and love and faith your way.
Jen DiMedio

Susan Pytel said...

My heart is breaking for you and knowing I won't see that smiling little face again. Peace to your family.

BrunetteKoala said...

Praying for peace for Gavin, freedom from pain. Praying for peace and comfort for you too.

I don't know what to say.

Nicole said...

Many prayers for your family. I ask God to bring you comfort and peace that passes all understanding.

Anonymous said...

I want to thank you for sharing Gavin with us, especially in difficult times, when he was hurting and you, Madi and Adam were hurting. I know that I could not have opened my heart up to the world to read. I am not that brave.

And all the pictures of Gavin and Madi, even in his last days...you've shared with us the beauty of your children.

May Gavin thrive and be the Sunshine boy in heaven.

T Tran

Anonymous said...

There has never been a child more loved and adored than Gavin. Thank you for taking such beautiful care of him, and for letting him know every single day how important and beautiful he is. He knows it. He SO knows it.

A paradise beyond our comprehension awaits all of us who believe - and I have no doubt that your perfect boy will be granted an immediate all-access pass when the time comes.

Peace be with your family during this very difficult time.

Sharon said...

Prayers coming from New Smyrna Beach, Fl.

Gavin has touched my heart.

Anonymous said...

Praying so hard for peace for Gavin and all of you. I will be thinking of Gavin and your family in this difficult time. My heart is breaking for you!

-Angi-

Audrey said...

I don't have many words, but we love you (though we've never met you face to face) and we are praying (actually I think the Holy Spirit's groanings are going up to our Father in a holy chorus right now--how can we even begin to know what to say?)

love,
Audrey

Jenn said...

Praying for God's peace to surround all of you today.

Debbie said...

I don't know you.... I don't know Gavin....but my heart aches for you and my tears flow.... my prayers are being said and lifted to a loving God that is embracing all of you during this unimaginable time.

Tom & Cindy Powanda & Family said...

Adam , Karen & Madi , Our heart just breaks for you all. I hope that you can feel the love of everyone around you as you release your son to God who will welcome him with open arms! Such a little guy to have done such a big job here on earth. May God grant you all peace and serenity as you say Good Bye. We are here for you if we can do anything at all.

Sarah said...

We are praying for peace for your family.

Katherine said...

I am hurting for you right now from halfway across the world...even though I don't know you, we have the strong connection in Christ...which I pray and hope He will hold you up and continue to give you His perfect peace during this incredibly difficult time. I cannot even begin to imagine what you are feeling, but God does, and I pray He will comfort and hold you in His loving arms as you walk down this road. I pray that Gavin's life and story will continue to minister to many long after he has left this earth. He is going to a place where he will hurt no more. Praise God we who trust in Him will all be there someday!

I know there are no proper words of comfort right now, especially to understand why this has happened to your sweet boy. No answer on earth will do, so we look to the hope of heaven.

Blessings and peace on you all~

the crucible said...

Gavin has done miraculous work on earth. Praying that Gavin's final reward can bring you some semblance of peace to your family, too. Blessings.

Anonymous said...

Praying for your family. Praying that God gives you peace, comfort, and understanding. Know that little Gavin will be in no more pain and no more suffering. He is in Gods hands and one day you will see him again. My heart goes out to you and your family. I know God's strength is shining down into your hearts. My prayers are with you always. Love, Heather

Ckinneer said...

I can't even imagine what you are going through right now. I pray that you and your family have peace. I am so sorry...

Lisa said...

I am praying for peace. Gavin has touched so many lives. He has been and always will be our "little angel"

Anonymous said...

Praying for you, dear sister. Bless you, bless you, bless you all.

Jill said...

I was at duPont this morning with my son. I was thinking about your family the whole time I was there. I hope you have peace in your decision and know that Gavin will be in a place of complete healing.

Thinking of your family often!

~ Katie ~ said...

My heart is hurting for you and your family. Although he will be in a better place, healthy and happy, it's still hard to let them go. Praying for you all.

Brunch at Saks said...

Praying for your family with all my heart and soul.

Love, Annemarie
Los Angeles, CA

Barclay Kathryn said...

Im so sorry.

Anonymous said...

Praying for your entire family. May you all feel the loving arms of Jesus around you today. - Erin in OH.

Janice said...

God Bless you all. When the Lord is ready for Gavin you can be assured that he will be with him forever and always and you will some day be together again.

Crystal Renaud said...

echoing the prayers for peace being prayed by so many.

carlisle clan conversation... said...

Praying for your sweet family & God's abundant grace.

Blessings,
Jenni Carlisle (Sean Cates'Sister)

Krystena K. said...

Dear Gavin's Family,

I am so very, very sorry to hear about your little one. Unfortunately I haven't known Gavin very long. I just found your site a few days ago. My heart breaks for Gavin and you all. I cannot imagine what you are going through. Through many tears, I give you my sympathy.
Love, Krystena

American History said...

your prayer request touched us.
We are praying for you.
We found this site helpful www.holylandprayer.com Check it; maybe it gives you a relief.
God bless you.

Anonymous said...

tears are running down my face as I read your post...your blog has captivated me for some time now. I am praying for you all today and wish I could say something that would help...you are in my thoughts and prayers. Jen

Jessica said...

Jesus, be near. Hold Adam and Karen and Madi close. Gavin has touched so many hearts and we pray for extra strength. For your peace that passes all understanding.

Deeply saddened to read this post today...how close you will all be to Jesus. Praying He gives you His strength.
I'm so sorry you guys have to walk this. So sorry. Standing in these final hours with you guys.

Blessings.
Jessica

Anonymous said...

Praying for peace.....and sending love. Thank you for sharing Gavin with us, he will never be forgotten.

karishma said...

I am so, so sorry.

Anonymous said...

Please know that there are prayers being wrapped around you and your family. May you have peace.

Sarah

Anonymous said...

our Little Gavin the time has come for you to leave this part of your life. Dont be afraid, take the hand and he will show you a much better place. a place where you will never feel pain again. You will be able to run and play like little boys should. It will not longer hurt to take a breath. Your time here on earth is almost completed, You have touched SO MANY people most of whom you dont even know. You fought a good fight and now it is time for you to rest. We all know you will be above us running and playing. As you run past us so fast we will feel the breeze you leave. The lord can take you from us but we will ALWAY have menories. From above you will see how much your family loves and misses you. Remember it is only for a little while. You will all meet again. Now you go run and play and have fun our little Gavin. God has better plans for you, a better place. We will all be ok, sad but ok. Till we meet again..XXOO.

Misty Rice said...

I cry as I sit here and read your written words. You sound so strong, but the pain is so visible and raw. My heart breaks for you.

I am even sad that I was not able to get his hats out to him on time. As my family have all been sick and I was swamped and in truth forgot to get them out.

I am sad about that and I apologize greatly.

Today I spent the last hour reading through your blog, looking back on better days with Gavin and enjoyed all his smiling days. His bright blue eyes, his precious pale skin. The excitement you can see in his eyes when at Disney, or on his birthday and many others.

He truly is a unique gift of Gods that is leaving some beautiful footprints on this earth and in the hearts of those that ever had the chance to get to know him if through your blog or in person.

I am jealous of those that got to meet him in person. I wish I could have. I wish I could have placed a big kiss mark on his forehead like Cinderella did or was it a fairy? I just forgot.

I want Gavin to be pain free and healed, but for you as a mommy I don't want your heart to experience this kind of pain and loss.

I am sad Gavin didn't get to spend a night in HIS house.

I am sad you had to write this post.

BUT

I am very thankful that you know Christ, you believe in his grace and will and purpose in our lives, as well as Gavins.

I pray for you today, tomorrow and the next few days, months to come. This next journey you are about to be on is hard.

I look forward to seeing your pictures from NILMDTS. That's what I do for Joe DiMaggio's childrens hospital here in Florida.

God bless you sister in Christ and my heart goes out to you and your family today. Please give Gavin a big kiss on the head from us here in Florida, and tell him to give Jesus a big hug from us all. We will see him again!!

Alden and Dorian said...

I don't know you but got word of this tough place where you are ~ from one mom to another and one believer to another ~ but I am praying for you all as you see your Gavin pass into Jesus arms. Peace. We trust in our Almighty God for comfort, His peace that passes all understanding, His arms to simply hold you all as you shed those many tears. Thankful for the precious life of Gavin.

Erin said...

Praying for Gavin and the whole family during this hard time. Prayers sent your way.

Erin
www.caringbridge.org/visit/braydenthomas1

Anonymous said...

So sorry you have to let him go so soon...so not fair. Hopefully you will have some peace knowing he will finally be free of all the health issues he has been fighting since birth. He will be with you forever. Our prayers are with your whole family.

kathleen

Nicole, Drew, Jack, Megan, Sophie, and Lucy too said...

These words are so difficult to write...

Go in peace little one...God will be waiting.

You have touched the lives of so many!

Little Millie said...

I pray peace for Gavin and your family. Thank you for sharing your journey with us. I pray that we have been a support for you.

In Christ,
Karen Milligan

Christie Gideon said...

I've been reading about your precious little boy for some time now. My heart goes out to you and your family in this tough time. I pray that you find peace cause he knows that the love you have for him is so good and so great and that gives him peace.
Love to you all,
The Gideon Family

Susan said...

Our prayers are with you all at this time.

Danielle said...

I only met Gavin once but I have been following your story and have been truly inspired by your strength. Thank you for having the courage and generosity to share him with us! I continue to pray for peace for Gavin and your family.

Coco, not as in Chanel :) said...

This is my first time to visit your site.

God Bless Gavin and his journey to Jesus!

Many prayers and love to you and your family.

Anonymous said...

Adam & Karen,
I don't even know where to start.
I've never lost a child, but as a nurse stood by parents who did. I am sure your family as affected all
of you caregivers in a large way.
I am praying for God's love & peace to wrap around you and hold you in this time. I am glad that you have your families with you for love, support & comfort. I will be thinking and praying for you in this time of sorrow.
I know, that Gavin will soon be in Gram's arms (if he'll be able to sit still that long) just like she held all of her granchildren when she was here with us. I need to go, but remember we love you.
Evy & Dan

Heather said...

praying for your family. ((hugs))

MFA Mama said...

I will be thinking about your family tonight. I hope that Gavin is able to slip away peacefully and comfortably and that you, Adam, and Madi will be able to comfort each other afterward. I'm so sorry.

Brenda Brown said...

God bless you all.

Anonymous said...

God's strength and peace be upon your whole family.

sam {temptingmama} said...

You're all in my thoughts. I wish I had that words that could make this even a little less painful. I am so very very sorry!

Thinking of you! *hugs*

Baylee and Blair's page said...

Karen, Adam, Madison and Gavi... my heart is totally breaking for you all right now.

You are right with everything you said. He deserves to be pain free and will be in heaven looking down protecting your family.

I can only imagine!

Love you guys and BIG HUGS - Tiffany

Anonymous said...

Your family has touched the hearts of so many people. I am praying for all of you.

Kristina said...

I have never met you, but I am still crying like crazy. I'm still praying for a miracle - a little bit more time to spend in your new house together without pain - but am also praying for comfort for your family.

Anonymous said...

Thank you for sharing, even at such a difficult time. Your post was so well said. Gavin will never suffer again, and will be running and jumping and playing soon. We are so sad for you and your family. You've done so great with Gavin. We are keeping you in our thoughts and prayers.
Saballos Family in CT

Amy Beth @ Ministry So Fabulous! said...

I'm praying.

I'm so, so sorry.

Elaine said...

God bless you and keep you in His comfort during this time. Sending lots of love, hugs and courage for you...even though I'm a stranger..we are bonded through our love of Christ.

Jenkins said...

Praying for you and the entire family. I have been reading your blog on and off for the past severals months and found it clear, how much you love your children...giving them the best love and attention.
Your little Gavin and your family has been touching many, many people.

Rochelle said...

So very sorry. Praying for peace for all of you.

Rochelle Sanderson

tripntwinmom said...

My heart breaks for you...

Praying for peace for Gavin and ALL of your family. Hope you ALL find some as he passes and through the upcoming days...

What a miraculous job he did for such a tiny being!!!

Amber said...

"Be still and know that I am here"

Close your eyes, open your hearts...His still small voice is there. Hear Him during this time. It may very well be that you hear your sweet Gavin giggle.

Big Hugs and Lots Of Prayers Sent your way and to the Big Sister...
A different Amber

Anonymous said...

Praying for peace and comfort. Praying for your family.

Jen D

Anonymous said...

I'm so sorry.

Melina said...

Blessings and prayers for peace for you right now, that God will wrap tight around you know and bring you comfort in your darkest hour. Know that he is going to be whole and well and safe, and you will see him again. Gavin has made such an impact on my life, I cannot fully put it into words.

Debi said...

My heart is crying inside for you...but our Heavenly Father awaits for your precious little one with open arms....that is one thing that is absolutely true. God's promises....find comfort in them. Peace to you my friend.

Tami and Bobby Sisemore Family said...

hugs and prayers go out tou yall.

Blessings,
Tami
PRAYING JEREMIAH HOME QUICKLY
www.tillGodbringsthemhome.blogspot.com

Shonda said...

My heart hurts for you, and your family during this time. Just know Gavin will be one of God's sweet little angels. Reading your blog has really touched my heart.

Lots of prayers coming your way.

Angela said...

My heart is hurting for you guys. Gavin and your family have truly been an inspiration to many. Gavin, you are one little boy who has touched the lives of many. Although I've only had the pleasure of meeting Gavin a few times, I have faithfully followed his blog and prayed. I now pray that Gavin will soon be at rest - no more pain or sickness - and that your family will be given the extra strength needed to get through this. I pray for this and so much more.

Copperhobnob said...

I don't pray but i wanted to say i have been thinking about you all day today.

I hope you and Gavin find peace and strength in the hours ahead.

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