We are excited to officially announce the start of Chronically Cool Families -- a parent to parent support group for families like ours who are struggling through everyday life raising a child with a chronic illness or disability. Adam and I know first hand the struggle that comes along with having a chronically ill child. There are so many families out there who often time get isolated simply because no one can understand the challenges they face on a daily basis.
Our goal is that no family walks this path alone. A great strength to Adam and I was found in other families -- many who read this blog, who also face similar difficulties. Even though every story is different it's just nice to know that another family could understand, at least a portion, of what we were going through. This group in no way will change the sick child's health but it can give hope -- hope that life is possible despite a disability -- that joy can be found even in the most stressful and chaotic moments.
Another exciting part of this group is that we will also be offering a sibling support group which will include both the effected child and his or her siblings. When Gavin was here my one wishes as a mother is that my daughter, Madison could understand that there are lots of other children who are just like her -- having a sibling with an illness or disability. The group will be simply a time for kids to be kids -- both with illness/disability and without.
Group starts on March 25th @ 7pm at the Alfred I. duPont Hospital for Children. If you are interested please contact myself or Jennifer Fenstermacher who is a social worker at duPont.