Thursday, April 22, 2010

Children's Rare Disease Network...

I have the amazing opportunity to to volunteer for the Children's Rare Disease Network and be a contributor to their RARE blog.  This is an amazing resource for families, physicians and advocates all working towards a common goal, bringing awareness to Children's Rare Diseases.  This week my first article went up on the site and I'm excited to be able to continue to be apart of the good things this organization is doing.  Come check it out.

7 comments:

kyna said...

Sooo proud of you! What a blessing you are for being real!

Me and My Boys said...

Wow! So cool! Jess

Gilda said...

I am amazed at the work you continue to do. I have not commented in a while but wanted to let you know that I always check in on you guys all the time. I think it's wonderful that you are doing well, I know your work is all because of little Gavin and your desire to help others.

Anonymous said...

Karen, you should SO write a book. You have such a great way of expressing things with words. And such a story to tell too. Nice job.

Debbie S.

Brayden'smom said...

Another wonderful blog from you. You have a truly amazing gift, writing works for you. It is wonderful that you get to share Gavin's story with people all over the world. It was wonderful to see Gavin's smiling face again.

Heidi said...

Great article Karen, love the way you write. AND I can never get enough of Gavins sweet smile.

I also hope that someday there will be a program like CCF everywhere. It would be nice to have that support for our family here. As much as youve been through, youre always finding new ways to give back. I love that about you :) HUGS to Madi-

Heidi & Jack.

Catherine said...

:)