There are many things that we face as a family who has not only walked the journey with a chronically ill/terminally ill child, but also as a family who has lost a child. Something we just bring a different perspective to -- this is really starting to more obvious as Madison has started school.
When Madison started school she not only started a new season of her life but also begun a new season where no one knows about her past season. This has so many positives, like a fresh start and opportunity for new experiences, but also can hold a few challenges.
Today Madison had show and tell. The topic was all about me. Wow. Madison has a pretty big story to tell right now. The death of her little brother is still rather fresh and I'm sure she is at a point in her life where she feels rather torn between holding on to her grief and also letting go just a bit and making new memories and a new life still remembering her brother but allowing other experiences to enter her world.
Last week she insisted on bringing a photo of our family from our Now I Lay Me Down To Sleep session, just before Gavin died. Even though these photos are so very special to our family, they obviously are not appropriate for a class of five year olds! I talked her out of it and we decided on a more appropriate family photo, a photo of Gavin and her, a snow globe and a stuffed dog.
This a a big day for her. I wanted to be sure she felt that she could openly talk about her family, on whatever level she wanted. I contacted the school and her wonderful teacher made sure the guidance counselor was there to support Madi as well as the other students.
I received a call from the school this afternoon saying she did great and that the other kids in class asked great questions and Madi did a great job answering them.
Next hurdle will be the science lesson on nature -- what is dead and what is alive. The teacher talked about this in orientation and Adam and I just looked at each other and smiled!