There are some days where the intensity of Angela's needs are so overwhelming. If I said the opposite I would be telling a rather huge lie. That fact that I love this beautiful little girl beyond words really doesn't change that fact that her needs are great. Angela has amazing potential. Adam and I have been blown away by the things that we see come out of her little mind. The biggest issue with Angela's care is that she needs to be engaged at all times. She needs to be touched and talked to almost every second of the day when not sleeping. If she is not being engaged she reverts to self-stimmulating behavior that causes the sweet Angela we know and love to temporary go away.
I know without a shadow of doubt that we will be able to help her find a way to stop these behaviors and find a way for her to bring this wonderful world to her in a life enriching way. With that said -- we have a long road ahead. We are ready -- but today I'm a little tired.
Then I look at these photos. This is Angela's new gait trainer. Just a few months ago there would be no way she would have been able to tolerate bearing weight on her little legs, not to mention holding herself up so big and strong. This girl is amazing. She is so smart and is catching on to so many new skills faster than we can teach them.
This one photo is of Angela playing so big with her arms. Do you realize how difficult this is for a child with CP and blindness -- not to mention she is upright in the gait trainer balancing her body weight. This leave me speechless and is such an amazing reminder of just how far she has come. I found these great bells that I attached to each of her ankles at the gift shop in the hospital. Due to her visual impairment, the bells help her to see her feet by simply hearing them. They also provide some great fun motivation for those little legs to get moving.
We will begin the process of purchasing a KidWalk this week. The Pony is great but I've heard such amazing reviews on the KidWalk and can't wait for Angela to have one. The Pony we have was given to us by a friend who also received it as a hand me down. Some of the adjustments are no longer adjustable so we are hoping the process will not be too long. We are still waiting on her wheelchair to come in as well -- nothing ever happens fast.
We are taking one day at a time. Usually by this time each day I'm tired beyond tired, but each morning when I hold this sweet little one in my arms, giving her my good morning kisses and hugs the tiredness of previous days just melts away. She is so worth everything.
Really worth everything.