This past week Angela had her 24 hour ambulatory EEG. I'm not a fan of EEG's -- it's that darn glue. You would think with all the new technology these days there would be a better system for putting the electrodes on a child's head. After a long night with Angela, a bottle of nail polish remover and cotton balls I think we have the majority of the glue out.
She did have several episodes of possible seizure activity during the EEG so we are hopeful the neurologist will have some information about what we are seeing. I just am really looking to help her out of this funk, even if it's not seizure and more behavioral it's something we need to seriously work on as it seems like every time she goes into that mode it causes her to regress.
We've purchased lots of new apps recently for Angela. I wanted to share a few with all my fellow iPad loving friends out there! Angela's new favorite app is Tap Tap baby. This is a great app for kids needing that cause and effect input. The app is very simple yet offers over four activities in the one app. It offers fireworks as well and animal sounds and other fun stuff. I really like the animal sound because it teaches her to aim. If she likes the pig sound she needs to try to aim in the same spot to hear the pig sound again. Even with her visual impairment she still has physical movement and can navigate just by recalling her motions she made to produce a certain sound.
The fireworks is always a good one to get her little fingers open and moving. The black screen and the bright colors and sounds of the fireworks are a perfect combination for Angela visual impairment.
Our other favorite right now is fish pond. This is such a simple app and Angela doesn't really use it for the visual aspect but she loves the splashing sound and it keeps her very engaged!
Read along books are a real life saver when we are out and about. Angela has trouble with excessive light gazing and these books, with the bright screen, help distract her from the light and help her find a more socially appropriate activity to do. I love all Dr. Seuss books -- and they are currently on sale, which makes me love them even more!
Angela loves music and although this is a higher cost app this app offers to many songs and the best part is that it will play full screen and you can loop the seasons and it will play for around ten minuets. This is a great app to work on motions to songs and also get Madison involved in Angela's play. I've also learned a few new songs as well!
I'm just so excited with the progress our girl is making. Ugh she just melts my heart in so many ways!