I've shared on here before about how Angela turned three and she aged out of her current Early Intervention program that was providing her with her therapeutic services like occupational therapy, physical therapy and speech. Angela has now entered the educational system -- which right away bothers me, as my little girl is three years old. But that's just my opinion and a while other blog post.
Anyway, we have been introduced into the world of IEP and legal mumbo jumbo. We had petitioned to keep Angela at home, since we are still trying to create a stable environment for her and better give her the feeling of permanency, not to mention she is rockin in her development and we see no need to change that! Angela was evaluated by our local intermediate unit and was found to need a certain level of services -- which I understand since she is indeed disabled. I totally get her need for services. What I do not get is that I have no say in how much services we as a family are willing to accept. I was able to talk them down initially but they will not go any further.
If I may boast a little bit. We do amazing things with Angela. It's just our talent if you will. Some people are artists, some good with numbers -- we rock out providing care for kids who need a bit extra. We are creative and also have so many resources at the tip of our fingers if we need ideas and strategies. I will be the first to admit that I need help with teaching Angela to walk and stand. We are doing pretty good, but I don't fully understand how the body works and how high tone plays a role in taking steps and other random things like that. So -- I really wanted PT for Angela through the IU but felt that all the rest was a waste of the Therapists, Angela's and our families time, not to mention it takes her away from the biggest opportunity to develop -- living life!
Well, educational based services do not work like that. If her IEP says she needs "x" number of hours per week of therapy she has to receive that -- no matter what we want. We can't just pick PT and not take the entire package. Well, this package will not work for us. I have nothing against services, but for Angela, at this time and in this family it's not gonna work. However since we still want and need PT we are going to get her private PT most likely though CHOP.
Now with all this said I am fully aware that I can fight for what I feel is right. But to me it's totally not worth it. As a special needs momma, I will have my fair share of battles in the future. I will pick and choose which ones are really important. This one is not. I need these people to like me cause in a year when Angela is ready for school I'm gonna ask for a lot. A Lot. I need them to be on my side.
Angela continues to make progress in all areas. She is standing and taking occasional steps with assistance, she is playing with lots of toys and has moved beyond the need for "sound" toys, but now is enjoying playing with blocks and other small toys. She is putting objects "in" and "out" of a container and she is utilizing her ability to nod her head "yes" and "no" in very age appropriate ways.
Love this girl to bits. She is amazing -- so grateful to provide her with everything she needs -- and rest assure she will get everything she needs. Oh, and see that cute headband? It's DNA! She is supporting her big brother as this week is Mito Awareness week. Go learn more. Go buy a headband.