Last week we took a trip to seating clinic to find some proper seating for our little monkey. Jayden is a tricky boy to find proper seating because although his supportive needs are not that high his safety and durability needs can be hard to find a match. Unless you have seen Jayden in action you probably just wouldn't understand his need for speed. He never stops. It partly due to the fact that he's a boy and he's two years old but most of it is due to his head injury -- his regulatory controls are just not there.
He has this need to climb that just can not be satisfied. At times it can be difficult to watch. Just imagine you're laying in bed and your body is aching and you just can't find that perfect spot -- tossing and turning trying to find comfort. That's a good description of Jayden -- only it never stops unless he is restrained in a chair. As soon as we put him in his high chair or stroller you can just see him melt and find peace as if this huge weight was lifted off him.
So we are trying to find that perfect chair to help him find comfort and also safety. We ordered him the new riffiton activity chair which will work great for him. I've always liked this chair and tryed to get it for Angela last year. The main feature that I love is the fact that it's vynal -- I can wipe it all down with no yucky fabric to hide dirt and drool. We still have a big need for a wheelchair or adaptive stroller, but we wanted to get the activity chair first so insurance would not give us a hard time. Jayden previous got a transport chair but it's just not appropriate for his new life. It does not hold his equipment without tipping over and it is just not a good fit for his body.
For now he is using a nice stroller that we purchased and it works ok, but again the safety aspect is huge for Jayden. No typical stroller has the type of five point chest harness we need to keep him put. Yes many trach vent kids use typical strollers but Jayden is not your typical kid. He's kinda a mix of a big fluffy teddy bear and a little bit hulk hogan.
Soon Jayden starts gymnastics which should give him an outlet to climb and tumble in a safe environment -- in addition to the other two gym classes both the little ones attend on a weekly basis. Angela will be in preschool yoga and Madison starts swimming and field hockey. So fun -- so exciting.
I guess all the Owen's kinda have a need for speed.











6 comments:
Hey. I read your blog and I was wondering... (I am sorry for asking this, but I couldn't avoid) did you ever thought that Maddie will always have to take care of Angela and Jayden? Don't get me wrong, I think that adoption is awesome but the truth is that it wasn't her choice. I mean, it is great to adopt children with special needs, but since you have a daughter don't you ever question how it will be for her? You know what I mean, taking care of them forever...
@ anonymous -- We have thought about that a lot! We will be making and have already been making plans for our little ones futures after we are gone. Both the kids receive SSI which is put aside for their future care and needs. Madi will never have the burden to have to care for her siblings beyond being their sister and loving them.
With that said. Adam and I strongly believe that just as Adam and I were made for this (taking care of kids/one day adults like Gavin, Angela and Jayden) we all without a doubt believe that God choose Madison to live this life as well.
Madison will grow up, get married and live out all her dreams. IF she chooses to care for her siblings after we are gone it will be out of love not obligation.
Great question....brilliant answer x
I too have adopted two special needs little boys and have an almost 7 year old daughter. We will never expect her to care for her little brothers other than the normal - grab your brother's cup.
But I also have faith. Faith that my boys will be able to live on their own.
And I have that same faith for both Jayden and Angela.
We can't put our special kids into a box and say that they can not ever be able to be independent.
Of course we will prepare and have back up plans.
Even now, at the old age of 32, am preparing myself physically for the boys getting heavier. But I still have faith that they will overcome many of their challenges.
The God we serve is big and the Great Physician. I am excited to see what the future holds for Jayden, Angela, and my boys.
You Rock Abbey -- I totally agree!
I've read your blog for a while now, but never commented. Your family is very inspirational and so full of love! Thanks for sharing your ups, downs, and days with all of us!
I just wanted to leave a link to a stroller that may be good for your son. We recently got one for our son (who is not mobile), but we love it! I was thinking it might be a stroller that would work for you guys as well.
http://www.adaptivemall.com/sptoeiopuch.html
Keep up the wonderful job you are doing with all your beautiful children!
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