As I've mentioned before Jayden has come so far since his head trauma. Although I didn't know our little boy back then I've heard stories and seen photos of his very sick little body. I was told that a few months after his trauma the nurses would have to wipe his eyes as the simplest thing like blinking was lost due the intense damage in his brain.
And here he is now -- the doctors shared with us that Jayden's prognosis was very poor. They figured he would have little to no quality of life, and yet he kept fighting. The nurses told us stories of how one day they would turn and look to see Jayden holding up his arms and it brought them all to tears - the baby that never moved and if touched would cry out in pain, was indeed moving and making progress. It's amazing. So needless to say that fact that I'm even talking about gait training is nothing short of a miracle.
I wish I had good words to describe Jayden. People use phrases like -- all over the place and never stops to describe him. He wants to walk so bad, but he has little to no concept of time and space. He's just kinda out there in his idea of where objects start and end and distances between one object and another. He just literally flops from one things to the next. He likes to bend over and stand on his head and tumble. He is able to stand up with the support of furniture or hands but is so floppy that he will be known to just bend in half at any given moment.
Gait training has been difficult for him because of these things. He has gone through several different gait trainers but none have been successful. He will walk ok when he wants to but he is never safe and as his stepping has gotten better his safety has gotten worse. The one shown here is a popular Rifton Pacer -- he wants nothing to do with it. We've tried ever configuration possible. We've harnessed him in and taken it all away. He will stand up in this thing and just bend right out the side or pick it up and throw it. He is just not safe.
I think the key will be in his new braces. His orthopedists and I agree that he probably has some unlearning to do. He is getting full molded ankle foot orthotics and the hope is that this will force him to relearn how to stand with some stability. Right now he just stand up and flexes his ankles to launch himself in any given directions.
I have no doubt that he will walk. Right now he is not ready. He may think he's ready, but he's not. I give him a good six months. I have this feeling that his vision and hearing are going to start going through some major progress as well as his overall cognitive development. This cognitive development will give him a little more meat and potatoes to back up his desire to move and groove.
We pick up those braces this week -- can't wait.