Yesterday I pulled Madison out of school for her seven year well check. Going to the doctor is probably on Madison's top ten list of most exciting and wonderful things to do -- crazy girl. Medical stuff is all she has ever known, so when she gets her turn, it's pretty exciting for her. Madison passed her well check with flying colors! She is probably like in the 300th percentile for height and weight measuring at 4ft 6inches and a solid 62 pounds. She's perfectly proportionate and I love that our doctor recognized that and doesn't give me the whole she is rather large for her age talk. I remember being a little girl and listening to the doctors tell my mom I was too big -- It stuck with me for life. I want my kids to know that no matter the outside looks like they are beautiful just the way they are!
There was no doubt in the doctors mind that Madison was a healthy girl -- her legs tell of a child who gets plenty of exercise -- bruised from top to bottom. So proud of Madison! We went through all the normal questions of social development and Madison is right on target! We ended the appointment with a sticker and headed down to duPont children's hospital for Jayden's Gastric Emptying Scan.
Jayden has complete aspiration. Anything in his mouth goes right into his lungs. He doesn't swallow, which in some ways is probably to his benefit since all his saliva mostly just comes out his mouth in a puddle of drool -- keeping it away from his lungs. However -- he still does aspirate a good amount of saliva. Jayden is a mover -- and this has also kept those lungs moving and clear. He is able to clear his airway very well. We suction him so frequently during the day, which is another sign that things are coming out -- that's all good stuff. The bad stuff is that Jayden has been spitting up. It started back in December during our visits, we would see very small amount of formula coming out of his mouth -- nothing too bad.
These past few weeks, however, the small amount and started into mouthfuls, which then results in us suctioning formula out of his trach. With this has come random fevers and occasional need for O2. Jayden has a nissen but it obviously is no longer in place. He burps all the time and the frequency of the spit up has certainly made us uncomfortable. So the doc ordered a Gastric emptying scan to see how things are moving.
The scan is no big deal. They basically mix radio active particles into his formula, feed him and then watching it empty out of his belly. They only did the hour long test and it seemed to move through, though he still had a full belly at the end -- but the test was only an hour. I did see reflux, which confirms the nissen is blown. So we'll see what the doc has to say. Thankfully Jayden is a healthy boy and can somehow keep himself from frequent pneumonia.
After the scan we headed to the Can Do park. This park is amazing and is my favorite inclusive park ever. The main reason I love it so much is that it is so open and there are so many options for kids of all abilities. I can wheel the little ones through so many paths and through so many jungle gyms. There are several different types of adaptive swings, with the ones in the photos topping off as my favorite! Jayden blew me away with his safety awareness, which deserves it's own post.
All the kids had an amazing time enjoying this amazing weather!