Friday, May 4, 2012

{Angela's Eyes}

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I know I repeat myself so many times on this blog but seriously -- Angela is amazing.  It's kinda funny 'cause with our family's process of switching home churches we have met lots of new people who never knew the old Angela.  We go on and on about how amazing she is and how much progress she has made -- they probably really don't get it.  I resist the urge to pull out old photos and show the crazy transformation that has taken place -- it's difficult, but never the less so far I have resisted.

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This week I took Angela to the eye doctors.  Again -- amazing.  Angela went through the normal exam and at the end I had the most amazing conversation with the doc.  She proceeded to tell me that one year ago -- and she pulled up her notes in the computer -- she notated that Angela had little to no functional vision.  In Today's exam, Angela's visual impairment was hard to spot.  It's certainly there but compared to where she was one year ago -- holy cow -- Amazing.

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I remember the day when all Angela would do was seek out a light source and stare off and self stimulate herself.  She would arch her back in such a forcefully manner to seek out the light -- it was really an phenomenal behavior and way to self stimulate.  This behavior is no longer seen -- ever.  Occasionally she will get sleepy and stare off, but most kiddies do.

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Then there was the sneaking in her room.  When Angela first came home there were a few self-harming behaviors that she would do that we worked very hard to stop.  When she would lay in her crib we would stand in her room and observe her and try to catch and correct the behaviors.  She would never have any clue we were there.  Lights could be on -- we even could be making some slight noise, and she would never notice our presence.  These days she spots us from all the way across the room -- there is no hiding or trying hide things from her line of vision.

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Recently she started a new behavior -- one that shows just how good her vision is.  She has began to turn hear head around to be nosy and look at people behind her.  Physical therapy has been a mess lately cause half the time, while in her gait trainer, she is desperately trying to turn her head to catch what the other kids are doing.  Can you say rubber-necker?

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Amazing.  This girl blows my mind.  But then again should I really be surprised?  We serve a big God who is more than capable -- more than able.  Love Him.  Love her.  

This journey is amazing.

7 comments:

Sophie said...

Praise God from whom all blessings flow.

Laura said...

Is there anything that you've done that seems to have helped Angela's vision. My son has CVI due to hydrocephalus, as a result of epilepsy surgery. His vision has definately improved over the last few years. He is tracking more and sometimes looks at objects but I don't feel like he has visual recognition. He's very responsive to familiar sounds and voices but never looks at something as though it's familiar. If that makes sense. I recently convinced his eye doc to let us try glasses but they haven't helped. I know every case is different but I would so love to give him his vision back. Any suggestions?

Laura said...

Is there anything that you've done that seems to have helped Angela's vision. My son has CVI due to hydrocephalus, as a result of epilepsy surgery. His vision has definately improved over the last few years. He is tracking more and sometimes looks at objects but I don't feel like he has visual recognition. He's very responsive to familiar sounds and voices but never looks at something as though it's familiar. If that makes sense. I recently convinced his eye doc to let us try glasses but they haven't helped. I know every case is different but I would so love to give him his vision back. Any suggestions?

Anonymous said...

Hi Karen, I'm reading your blog for a while even if I never commented before. You're an amazing mother and photographer.
I don't want to be intrusive, but could you post a video of Angela?

Karen Owens said...

@anonymous -- feel free to friend me on FB. I've posted several videos there. Videos can somtimes slow the load time of the blog so I try to avoid them!! I just recently posted one of Angela useing her talker on the iPad!

ANewKindOfPerfect said...

You are right - this journey is amazing. You have opened your house to two gorgeous new children. What a lucky big sister they have. Our sweet girl passed away less than 4 weeks ago from mito. We have discussed a lot in the last year about adoption a special needs child in the future. Now that Emily is gone and I have so.much.empty.time - I can understand the drive to do this even more. Emily taught me SO much, and what better to do with that knowledge and experience than bring home a cutie pie who would otherwise stay in a facility forever? You are an inspiration!

Jade said...

How wonderful. It sounds like a truly amazing adventure. So happy to hear that your little ones are doing well and thriving!