The days around here tend to be long. Don't get me wrong -- they are amazing, but we are not your typical American family which means our everyday living looks a whole lot different than many families. We work hard. Our kids work even harder. There is no taking off a day. Each and every day we are working hard to all move forward and grow. We have a strict behavior modification program that we use and with that comes moments where we feel like we just can't say, "put your tongue in your mouth" one more time.
But then there are days like today when we are reminded why we choose to live this life. Today we celebrate another year of life for Jayden -- four years to be exact. His celebration of birth is so much more than just a symbol of another year gone by -- it's a celebration of life, healing and hope.
Truth is, Jayden shouldn't be alive.
But he is.
This kid is teaching us all so much. He has amazing purpose for his life -- most of which I probably don't even fully understand.
This next year is going to hold lots of big changes. Jayden will be starting preschool in the fall, in a typical preschool setting. His nurse with go with him and we will have all the support of his IU team in this environment. It completely blows my mind that we have come to this point. I remember last year thinking that Jayden probably wouldn't be able to do a typical setting -- and that was totally ok, after all I want what is best for him. But so much has changed. He has changed. He is thriving. Mentally he is finding focus. He is walking. He is beginning to use his hands and fingers. He is saying yes and no using his head. He is using hand over hand ASL.
He is amazing.
He is ready.
Sometimes the days are long, but long days are totally worth it when they are filled opportunities to serve kids like ours. Today we are thanking God for another year; another year to be part of this beautiful boy's story.
Happy Fourth Birthday Jayden!